Parent Partners
One of the things I found particularly impactful at the conference was hearing about how impactful it can be having families caring for children with trachs and vents speak with families who might be considering a trach/vent for their child.
I'm curious how many centers have programs like this that let families connect in this way. This is something that we are now looking into here at Dayton.
Is it a formal or informal connection? Are the parent partners part of any parent advisory boards that your hospital might have? Are they paid through the hospital or a grant, vs. volunteer vs. consultant? Any resources and parent partners y'all have created that has been helpful?
10 Views